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Caston was born on April 22, 2010 He was then put directly on a ventilator. He started his life in the RNICU. He has 1p36 Deletion Syndrome and a chromosome 4 Trisomy with a translocation to chromosome 1.
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Castons procedure went well, but he ended up pulling the GJ-Tube out already so back down tomorow to get it redone. Caston has had a hard nite he had an apena spell dealing with his lungs full of flem and such. They had to intibate him and put him on the vent but his blood gases look good so they will hopefully pull it in the morning or afternoon. Other then that he is doing okay right now and we are hoping to go ahead and get the specialty docs that he needs to have consult and see where we stand on treatment b/c now he has had his heart surgery so we can procede with addressing some of his other issues and then back to UAB. And hopefully then go back home! So please keep Caston in your prayers!
*UPDATE* Baby Braylen has went to be with God and his angels lets pray he is putting Gods rocking chair to good use. He will be missed. He was a beautiful and loving child that had to leave us so young at only 4 months of age. Please pray for the family as they go through this terrible loss.
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PLEASE VISIT ~ Caston
http://www.caringbridge.org/visit/caston
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*Submit a Praise Report by clicking HERE*
Alena
“The clean PET/CT scans are now visually confirmed! No sign of cancer, no tumor, no 'dead" tumor tissue, nothing abnormal. Everything looked normal and as it should be. Perfect, as if she never even had cancer. No evidence of cancer. No evidence of disease. Thank the Lord!” |
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*Submit a Prayer Request by clicking HERE*
September 3, 2010
^^Bradley^^ **UPDATE**
“It is with a sad heart that I tell you, at 8am on his 18th birthday, Bradley heard the words from heaven Well done, my good and faithful servant.”
Carrie **UPDATE**
“We are inpatient tonight at UMC... with "our family" on 2 North. Carrie's labs at clinic looked awful.”
Dejon **NEW**
“Please say a prayer for Dejon!!! We are on our way up to the ER. The mass behind his ear is extremely large and he is in a lot of pain!!”
Owen **NEW**
“pray tomorrow at 1:30 CT for a successful surgery - and then at some point a successful extubation.”
Graham **NEW**
“one of the three shunts in his head is malfunctioning. He is going in for surgery later today to have it repaired.”
Jason **NEW**
“has multiple tumors on the lungs and the ones that were already there are growing, he has one on the left shoulder and 2 next to the esophagus on the left side. He now also has some on the spleen, the tumor that was the size of a grapefruit has doubled in size and now has sprouts that have grown and wrapped around everything. She also said Jason is caring around pounds of tumors…”
Bayleigh **NEW**
“Bayleigh has been up since 2:00 a.m. sick....I have a call in to the hospital to see if they can prescribe her Emend for nausea... the Zofran doesn't seem to be phasing her nausea...”
Hannah
“Tomorrow is a BIG day - Hannah will have surgery at 10:00 am AZ Time or 8:00 am CST.”
Dee
“Dee was admitted back to the unit today cause his central line is infected. They pulled the line tonight and are placing a port on Friday.”
Noah
“Noah and I are sitting in the ER waiting for a bed in CVICU.”
Alex
“Alex continues to look extremely pale today and now he is running a low-grade temperature. He is having a lot of dysautonomic crises…”
Braden
“Basically, they were not encouraging, the area of the tumour has not shrunk at all, but we can't tell if this is tumour or just scar tissue.”
Ben
“He has so much pain sometimes that he goes to bed to get relief.”
Tyler
“The aspergillus infection in his sinuses has invaded the bone. Praying that the meds will clear it up. On a patch now for pain as the infection does cause quite a bit of pain.”
Hannah
“Hannah has a bone marrow aspirate/biopsy tomorrow at 6:30am. PLEASE PRAY for no MLL gene expression and as close to 100% donor as we can get.”
Reid
“Reid's scans and his kidneys look good, but they are concerned with his spine. Apparently there is a gap between the L5 and S1. The medical term for it is Spondylolisthesis…”
Ken
“I know dad will never walk, talk, eat by mouth again. He will never be the dad I knew growing up. He is sleeping more.” |
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